Susie Notes: Our 44 year old son has been diagnosed with Leukodystrophy, and is in ‘an altered mind state”. Read: dementia
Since all this has happened we’ve tried to find little ways to make us happy.
We’ve been married over 46 years and have enjoyed music that has eventually played out the story of our life together.
Our Bose stereo system was over 20 years old. After being ‘fixed’ ten years ago, it’s been disabled for a long time, holding cd’s hostage for too many years. Bossman hooked it up to another CD player for a while but I had to use three remotes to run the working CD player that was on the bottom shelf, a quarter of an inch from the floor. I wear progressive bifocals. Fagedaboudit. I strained my neck trying to figure out what stupid button did what.
A few days ago, I wandered into the living room, stood in front of the cd player with all my music in it and started to cry.
Bossman said, “What’s the matter?”
I sat on the edge of the coffee table, looking at that blurry old cd player and said, “All I want is my music.” I sobbed and he held me.
Monday he went to one of the Big Box stores, Sam’s or Costco, priced out equipment and came home to share what was on sale.
“Go get it. We need it.”
He went to the bank with his safe deposit key, and took out money from his dad’s estate sale that he’d been saving for the last eight years. (this is very odd, since Bossman will research something until it’s out-of-date) He brought home a new speaker bar and had it set up before dinner was ready.
For the first time, in a long time, we danced with tears in the living room to our music.